FSHD Global Research Foundation
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The FSHD Global Research Foundation, located in Sydney, New South Wales, is dedicated to advancing the understanding and treatment of Facioscapulohumeral Muscular Dystrophy (FSHD), a genetic muscle-wasting disease. Through medical research grants, advocacy programs, and community fundraising events, the foundation aims to find effective treatments and improve the quality of life for individuals affected by this condition.
With a focus on patient medical advocacy and partnerships with biotechnology companies, the foundation works to foster innovation in therapeutic development. Its initiatives include a patient-led registry, which helps Australians living with FSHD participate in clinical trials and contribute to groundbreaking research.
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