Aplastic Anaemia Registry

The Aplastic Anaemia and Other Bone Marrow Failure Syndromes Registry (AAR) in Melbourne is a clinical quality registry that gathers health information on patients diagnosed with aplastic anaemia and inherited bone marrow failure syndromes across Australia. Managed by Monash University's School of Public Health and Preventive Medicine, the registry aims to enhance patient care and outcomes through comprehensive data collection regarding diagnosis, treatment, and quality of life.

Participating in the AAR allows patients to contribute valuable data that combines to form a clearer understanding of these rare conditions, ultimately benefiting all patients involved. The registry is supported by various initiatives, including funding from Maddie Riewoldt's Vision, reflecting a commitment to advancing research and treatment in this field.

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