Fontan Registry

The Australian and New Zealand Fontan Registry (ANZFR), located in Parkville, Victoria, is a secure database dedicated to collecting health information from individuals living with a Fontan circulation, primarily focusing on those with complex congenital heart conditions. This research initiative aims to enhance patient outcomes through clinical trials and studies that investigate risk factors, long-term complications, and potential therapies associated with the Fontan operation.

With approximately 1,800 participants, ANZFR is one of the largest databases of its kind globally, supporting ongoing research to deepen the understanding of health outcomes for those with Fontan circulation. The registry provides critical data for optimizing lifelong care and aids in health service planning, alongside facilitating recruitment for clinical trials.

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