Porphyrias Association Inc
The Porphyria Association Inc., located in Blackburn, Victoria, was established in 1987 to provide essential support services for individuals affected by porphyria in Australia. The organization is dedicated to raising awareness, offering peer support, and promoting education for patients, their families, and medical professionals.
Composed of both professional and non-professional volunteers, the association actively engages with the medical research community to facilitate education and advancements in understanding porphyria. Through various initiatives, including literature publication and biannual conferences, the organization strives to foster a knowledgeable and supportive environment for those affected by the condition. Generated from the website
