Savers

DEBRA is the UK's dedicated support organisation for individuals affected by Epidermolysis Bullosa (EB), commonly known as "butterfly skin." With nearly 4,000 members, the organisation provides a wide range of specialist services, emotional support, and resources aimed at improving the quality of life for those living with EB and their families. In addition to its support services, DEBRA is one of the largest funders of research into treatments and cures for EB, having invested over £22 million to advance understanding and care for this condition. The charity also engages its community through events, volunteering opportunities, and fundraising activities to enhance awareness and support for EB patients. Generated from the website