Canavan Research Illinois

Canavan Research Illinois (CRI) is a nonprofit organization established in April 2000, dedicated to supporting medical research aimed at treating and curing Canavan disease, a rare and fatal genetic neurological disorder. Through private fundraising efforts and networking with affected families, CRI leads initiatives such as the first international patient registry to improve the quality of life for children battling this condition.

In addition to its research efforts, CRI has launched the Canavan Disease Patient Insight Network (PIN), which aims to create a centralized network of information from families worldwide to assist drug developers and researchers. The organization also hosts events like the Annual Canavan Charity Ball and has introduced a Family Networking Program to connect families with leading doctors and researchers in the field.

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