The Progressive Osseous Heteroplasia Association

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1460 Bolingbrook Dr Ste 113
Columbus, OH 43228
+1 (614) 887-7642
http://www.pohdisease.org

The Progressive Osseous Heteroplasia Association (POHA) is a non-profit organization based in Columbus, OH. Dedicated to supporting individuals with Progressive Osseous Heteroplasia (POH), a rare disorder characterized by abnormal bone growth, POHA aims to raise awareness, provide resources, and fund medical research for a cure. With a strong focus on community engagement, POHA collaborates with other organizations, such as the International FOP Association (IFOPA) and PeerView, to educate medical professionals and improve the lives of patients with bone conditions.

POHA was founded in 1995 by Fred B. Gardner and his wife Joan, after their granddaughter was diagnosed with POH. Over the years, the organization has raised over $1 million for POH research, thanks to the dedication and hard work of its members. With a mission to find a cure for POH, POHA continues to honor Fred's legacy and support individuals and families affected by this rare disease.

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